I am so glad I came to visit… I needed to see first hand … day in and day out what Kirsten and Sean are facing. It is not an easy journey …Kylie has rough days after chemo. She is sensitive to light, sound, temperature, and sleeps a lot. Sean has to carry her everywhere she needs to go. Kylie trusts him to move her as it can be painful to move her. She needs to be isolated from visitors as much as possible… so she does not get sick ….as her chemo weakens her immunity . Then Cam and Quinn have to be careful where they go … so they do not bring illness home to Kylie. Kirsten has to prepare her formula for feeding and properly administer her pain and nausea meds, as well as monitor her temperature.
Nutritious meals have been prepared for them each day by a woman God has sent into their lives. I had to take a picture of only two of the many meals she is providing. What a blessing!!!
Sean and I did some yard work.. like cutting down the ornamental grasses and trimming bushes and trees. We wanted to get ahead of the spring growth!!!
After Kylie had a few days of rest from Chemo she emerged with a gift for her sister. It was a candy necklace which Quinn shared with Kylie. It was good to see them have some loving moments together.
I am home now and just got a message that Sean took Kylie to the hospital last night with a temp of 101.5
They were sent to Children’s in Pittsburgh and they got a bed this morning for her. Sean is there with her . Join me in prayer for this little one.
Kylie 