I am in Weston, Maine for the July 4th at Camp Living Waters visiting Erin and Dean and kids. We are on a lake and this is a nice break …I have limited access to good internet service and this is the latest post I got from Sean recently to pass on.

Update on Kylie

She was admitted on Wednesday morning for a fever. When she got to her room they did a quick assessment and noticed that her oxygen level was lower than it should be and her respiration rate was slightly elevated. They took an x-ray to check her ng tube placement and noticed that she has some minor fluid on her lungs and they also noticed a small spot in her intestines that they wanted to investigate further. To allow her intestines time to heal and reduce the nausea that she has been dealing with they have switched her to IV nutrition for the remainder of her radiation treatments.

After minimal improvements over the past 48 hours they adjusted Kylie’s medicine, gave her a blood transfusion, and took addition x-rays and a CT scan. She has also been moved to the ICU to be monitored more closely. The doctors have a plan in place and we will be patient as they adjust her medications to help her feel better.

As always , she is in good spirits and continues to smile through each obstacle.