Kylie is out of the PICU!
Erin and Karis and their families came to visit Rob and I for 2 weeks… I have been lax in keeping up with the blog with all the excitement of our together time. So below is a synopsis of the last 2 weeks. We are so thankful that God is using the doctors and nurses to nurture Kylie in her hills and valleys.
She has had really productive days. She was allowed to start eating and drinking and immediately asked for a popsicle and apple sauce. They removed the abdomen drain that they placed during her radiation treatment. Her breathing continues to improve and she is requiring much less oxygen than previous days. She met with OT & PT to help stretch her muscles and they provided some ideas to promote her getting out of bed. She felt good enough to go on a wagon ride and she took a nap in the sun room 😊.
Kylie received her 21st chemotherapy treatment on Thursday…..This marks the halfway point of her frontline treatment!!
She continues to show improvement and the team has started discussing discharge from the hospital ….over the next couple days if she continues to improve each day.
She met with music therapy and sang Encanto songs, physical therapy came to help her stretch her legs and go for a walk, she played bingo and made slime with childlife, and she ate pizza and a popsicle for lunch. They resumed her tube feeds to check her tolerance (she’s doing great!), they continue to reduce her oxygen, and chemotherapy went as expected.
. Eddie ( the dog) came and visited with her and Today she went to the healing garden with a couple nurses to blow bubbles and play a board game.
Our prayer is that Kylie’s oxygen levels will improve at night so she can go home.!!!
Kylie 