Pivoting – adjusting your direction and continuing your momentum toward your goal or mission.
Over the past 6 months Kylie has struggled with the side effects of her treatment. This led to countless blood and platelet transfusions, complication with her colon and liver, ascites, GI issues, and several ICU admissions.
The VAC chemotherapy (primarily the A – dactinomycin) was causing havoc on her body as she struggled to recover from the 7 weeks of radiation she received in June/July. We have watched Kylie progress through treatment with positivity and grace, but the side effects have grown more serious with each admission.
Since week 12 (May 23rd) all of Kylie’s scans have shown NED – No Evidence of Disease. After thorough consideration and several discussions we have decided to end Kylie’s frontline treatment and move into the maintenance phase of her chemotherapy. Maintenance chemotherapy is scheduled for one year and the 1st dose will be administered later today. She will receive 3 vinorelbine infusions each month and also a daily cyclophosphamide pill.
Kylie and Dad will travel to Pittsburgh later today to receive the 1st dose. Thank you for the continued love and prayers 💕
We are so blessed and continue to pray to the One who Heals , Hears, Sees, Comforts , and Knows!!!
Kylie 