Kylie was singing in the car and belting out Katy Nicole’s chorus from her song “ When I Fall”….. the song is about hitting rock bottom, overcoming , and surrendering control…. It reminds us that God is a steadfast presence who catches us when our strength fails.
I had never heard it before it brought tears to my eyes as she sang it
I came home yesterday
This is the post Sean wrote to let everyone about the results of the meeting on Tuesday with the oncologists.
We met with Kylie’s oncology and supportive care teams for a long and emotional discussion about where things currently stand.
Over the past several weeks we have explored many possible options for Kylie including additional chemotherapy, clinical trials, targeted approaches, radiation, surgery, and lower intensity treatments that could potentially slow progression while preserving quality of life.
Unfortunately, after reviewing Kylie’s recent scans, blood work trends, treatment history, and how her body is responding overall, the recommendation from the team was that stopping aggressive treatment would be the most compassionate path forward for Kylie.
While there are still treatments that could technically be attempted, the concern is that further treatment is now just as likely to cause harm and suffering as it is to help. Kylie’s body has been through an incredible amount over the last four and a half years. Her marrow is struggling to recover, she is becoming more dependent on transfusions, and the new bladder lesion and recent bleeding are very concerning developments.
This was one of the hardest conversations we have ever had as parents. We are taking the next couple days to process everything and decide exactly what the coming weeks and months will look like for Kylie and our family.
We are incredibly thankful for the continued love, prayers, and support that so many people have shown Kylie and our family throughout this journey. We continue to ask for prayers for Kylie and for wisdom and strength as we navigate these decisions.
Kylie 